Evrysdi
Generic: risdiplam
Retail Price
$80,000/mo
PAP Available
✓ Free/Low-Cost
SMA is a rare genetic disease affecting motor neurons. Three FDA-approved disease-modifying therapies exist — including Zolgensma at $2.1 million, the most expensive drug ever approved.
Compare retail costs, GoodRx prices, and manufacturer patient assistance programs (PAP) for spinal muscular atrophy drugs.
Generic: risdiplam
Generic: nusinersen
Generic: onasemnogene abeparvovec
Prices are approximate retail estimates. Actual costs vary by pharmacy, location, and insurance. Always verify with your pharmacist.
Common questions about Spinal Muscular Atrophy medications, costs, and savings programs.
A quick-start guide to understanding your diagnosis and managing medication costs.
Ask your doctor about first-line vs. specialty medications, expected timeline, and monitoring requirements. Write down all questions before appointments.
Before filling any prescription, ask your pharmacist about manufacturer copay cards, PAP programs, and GoodRx pricing. Many specialty drugs are free or near-free for qualifying patients.
For complex conditions, a specialist (rheumatologist, neurologist, pulmonologist, etc.) provides access to newer therapies and clinical trials unavailable at the primary care level.
Patient advocacy organizations offer peer support, educational resources, and can connect you with financial assistance navigators who specialize in your condition.
Many public figures live with spinal muscular atrophy and speak openly about their experience.
Celebrity and public figure stories about spinal muscular atrophy coming soon.
Browse community discussions on Pulse →We'll notify you when new patient assistance programs, manufacturer coupons, or generic launches reduce the cost of spinal muscular atrophy medications.
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